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The Butterfly Program

Care That Grows With Your Child’s Needs

Children receiving care through the Butterfly Program may be eligible for both curative treatments and hospice support at the same time through Medicaid’s Concurrent Care program.

This means families do not have to choose between pursuing treatment and receiving the comfort, support, and resources hospice can provide.

Our team works alongside the child’s physicians and specialists to help manage symptoms, improve comfort, and support quality of life throughout the care journey.

Family-Centered Care

A serious illness affects more than the child. It impacts parents, siblings, grandparents, friends, and caregivers. That is why the Butterfly Program provides support for the entire family. We help families navigate difficult decisions, access needed resources, cope with emotional challenges, and create meaningful moments together.

Our goal is to bring comfort, understanding, and support when it is needed most.

What Services Are Available?

The Butterfly Program offers a comprehensive range of services tailored to the unique needs of each child and family, including:

  • Pain and symptom management
  • Pediatric hospice and palliative care
  • Emotional and psychosocial support
  • Spiritual care and counseling
  • Care coordination with physicians and specialists
  • Family education and guidance
  • Bereavement support
  • Healing Arts services, including music therapy, massage therapy, and Story Keeping
  • Volunteer support and companionship

Every plan of care is individualized to meet the child’s needs and family goals.

Who Provides Care?

The Butterfly Program is supported by a highly specialized interdisciplinary team that works together to provide compassionate, family-centered care.

Your care team may include:

  • Physicians certified in Hospice and Palliative Care
  • Nurses certified in Hospice and Palliative Care
  • Social workers
  • Chaplains
  • Pharmacists
  • Nutritionists
  • Certified nursing assistants
  • Music therapists
  • Massage therapists
  • Story Keeper specialists
  • Trained volunteers

After-hours support and visits are available when needed.

How Do I Get Help?

Referrals can be made by a parent, guardian, physician, healthcare provider, or family member. Simply contact our Admissions Department, and a member of our team will help determine the best way to support your child and family.

The child’s physician and Hospice Savannah’s Medical Director work closely together to develop an individualized plan of care and ensure ongoing communication throughout the process.

How Is Care Paid For?

Medicaid and most private insurance plans cover pediatric hospice services. Through Medicaid’s Concurrent Care benefit, eligible children can continue receiving disease-directed treatments while also benefiting from hospice support and symptom management services.

If you have questions about coverage, our team can help explain available options and assist you through the process.

Here for Every Step of the Journey

The Butterfly Program exists because every child deserves comfort, dignity, and compassionate care—and every family deserves support, hope, and guidance along the way.

You are not alone.